I have been caring for my boyfriend's mom since May 2022 and I NEVER agreed to do this. In 2019, my boyfriend's mom was in and out of the hospital for back pain. For months they focused on her kidneys. Unfortunately, it was a spinal infection that caused her spine to collapse and now she's a paraplegic. She was in the hospital for a few months and then transferred to the nursing home where she was noncompliant and verbally abusive to the staff. On May 1st, her sister brought her home and then left a week later. We only get a nurse twice a week for an hour and a bath aide twice a week. They stopped physical therapy because she isn't going to be able to meet her goal of being able to transfer. She doesn't have control of her bowels and doesn't have a colostomy, which I feel she needs. We have always had a very strained relationship and she has made it known that she doesn't like me and hasn't for the entirety of the 15 years her son and I have been together. After her sister left, my boyfriend moved into her house, leaving me with our 3 children. He sleeps there at night, but if she needs care through the night, he calls me and I have to walk over and take care of her. Throughout the daytime hours, my boyfriend works and I am with her, so are the kids. I can't leave the house to shop or even allow my children to have extracurricular activities because she can't be left alone. Two weeks into caring for her, the doctor started two IV antibiotics that I became responsible for administering, I have ZERO medical training and I'm extremely uncomfortable with this. I also have a hard time transferring her with the hoyer because it's on carpet. Three weeks ago, she had to go to the hospital and they added in a 24hr IV of Lasik that has to be monitored. I told the hospital that I couldn't take care of her while she was still doing the IVs because it makes me uncomfortable performing that kind of care. I found a suitable nursing home for her for the 6-week duration of the IVs. Problem is, I don't want her to come home. I feel that her disability requires more care than I can provide and her family is unwilling to help, even though they were the ones who brought her home and dumped her on us. It's becoming a financial strain on our family and my children now resent their grandma because they can't have friends over and they can't do extracurricular activities this year. In addition, my relationship with her son is falling apart. How do I gracefully bow out? Is there any way to do so and spare my 15-year relationship? Am I in the wrong for wanting to put myself and my children first? Is putting my mental and physical health first?
Just adding for clarification that I only started caring for her because I was told by the nursing home she was released from that if I didn't take care of her that I could be charged criminally for neglect and abandonment.
Why would you want to stay with someone who treats you like a slave?
Get out NOW, or you'll end up stuck there forever.
I lost everything caring for my Mom. Job, relationship, freedom etc. Its been 8 yrs now. Im her daughter. In the end, I knew I cannot expect anyone else to committ to her care. I also could not place her in a nursing home. I had the opp to do so. Know your limits. Sounds like you do. If he loves you, he will understand that placing her care with you is really his responsibility. Dont feel guilty at all.
You have to get a backbone and say enough is enough. You refuse.
And if bf brings her back, it will be the sole responsibility of him. He will hire all staff to care for her 24/7. Period. Your done.
Were you consulted, or just told you are taking care of her? Here she is. You are responsible for not saying no.
Were you trained on a hoyer lift? You can sheer someone's skin off if you don't know what you are doing, and the person is not situated properly in the harness.
You have to turn an elderly person every 2 hours. There are ways to do it using mult pillows, and proper body placement. Who taught you that? Probably no one. Who taught you what to look for on the skin if his mom starts to develop pressure sores? There are things to watch for, and that must be caught early. The skin can look pink, but underneath it can be dying, and blood pooling. And once they start, they need a nurse to treat. Or else they can get worse very fast. Will your bf blame you when she gets pressure sores? And the probability of her getting them, is very high. I'd say I'm not going to be responsible for giving her pressure sores. That is a very serious complication, and a very real probability given her medical condition.
There is increased risk of uti's, and muscle atrophy, blood clots, and contracture. Do you know signs of a uti, or how to stop a contracture? You are not trained on this level of care. I'd say I'm not going to be responsible for that. It's to much.
The sister and bf can not just deposit her in the home, and let you do everything. Say no more. It requires to much skilled nursing care, which you are not trained in! And the stress of not knowing what you are doing, and the constant care is too much.
If your bf didn't discuss this with you, you have a pretty crappy bf.
And bringing in help 2 times a week is not enough. He goes over and sleeps there. Does he turn her every 2 hours, even at night? Sets an alarm and gets up every 2 hours to turn her in the night? I bet he doesnt wake up at all. Sleeps right thru the night.
Why does he call you over if she needs something? He is right there? That is beyond lazy. And you go! So you are responsible. Stop doing that. So he watches TV, eats, and goes to sleep. And he considers that caring for her. It isnt. That isnt caring for someone. That is just checking from a distance. He is also responsible for letting her get bed sores, and uti's bc if he's not changing her at night, he is responsible for skin scald and break down from letting her sit in soiled briefs for 8hrs or more. He cannot say he is caring for her, if he's not doing those things. He is not caring for her and calls you. Refuse to go over there.
You need to get a backbone. Your bf is using you if he didn't consult you on her care. He isn't even caring for her when he is there, and your allowing that. It can only change if you refuse. Sure he will get mad. HE wants you to have 2 full time jobs. He isn't doing any caring. He's relaxing.
You have to put your foot down. He will be very mad, but who cares. He's not a baby and doesn't get his way. And he will be even sorry-er when you 2 are separated, and he gets visitation and he has to do all her caring, AND has the kids. And yea I'd go there if need be. She needs a level of care you are not skilled in. Good luck.
I kind of mixed things together there, have the discussion with your BF first and then together with his sister so you and BF are on the same page when talking to sister and the three of you know where you stand when having these discussions with Mom and the care team. None of these should start with or include accusatory language, what has happened has happened and you each learned from it so you now know what you really can and can’t do. You all want what is best for mom and what works best for your families so go I to it supporting first your BF and then together his sister not blaming. G luck
My heart goes out to you and your boyfriend. You both have tried your best and to do what you both believe was the "right" thing. I can see how this whole situation all gradually slipped into play and that neither you nor your boyfriend chose for this to happen. Your question was how to tactfully tell your boyfriend that you cannot take care of his mother any longer. You don't deserve anyone to tell you to get married, get a job and take the kids, that wasn't your question.
I hope by now, you realize that you cannot be charged criminally for neglect. Nursing homes say all kind of crazy things, typically for their own interest. I was once told that I could be turned into Adult Protective if I TOOK my mom home. My mom was a sweetheart who would have been private pay. They liked her and would have been thrilled to take her cash! I brought her home and turned the worker into the director who apologized for the idiot. Your boyfriend's momma was probably a pain in the "you know where" for them and they wanted her out. Now things are different, and YOU need HER out, and it sounds like, from what I'm reading, that boyfriend is also realizing this is not working. So NOW is when the two of you need to unite and stand strong so boyfriend doesn't cave again when momma turns on the waterworks once she finds out she cannot go home. Momma needs to begin grieving her own physical loss and stay at the SNF. She sounds like a nasty lady, but, honestly, to be in her shape at age 65 is a very sad thing. Perhaps the facility social worker can help find a therapist who will come in to begin doing some psychotherapy with her.
In my opinion, going in "loaded for bear" when talking to boyfriend isn't the best approach. If he is your partner in life, you need to work as partners. You need to be honest that you cannot do this, and, yes, you WILL not do this. Then you need to stand your ground. With some people, you just need to be "black and white" not "gray" when you talk. You know what to say, but say it in love. Now, I could be reading this all incorrectly, and perhaps you want out of the relationship, if that is the case, disregard what I said! LOL
Also unless she has unlimited financial resources, she will need to private pay until she meets Medicaid resource threshold and then a lien goes on the house. So since you rent your home from her, you need to be prepared for the ramifications of that. You and boyfriend will have to start making some decisions about that.
Finally, it seems very sad to me to think about the kids resenting their grandmother. Her placement in the SNF can improve this relationship. The kiddos need to live their lives, participate in school activities and have the right to live in a home environment free of this turmoil! Hopefully, once she permanently moves in to the nursing home, the kids can visit regularly, along with you folks. Often kids enjoy visiting nursing homes. I used to take my students to a nearby nursing home, and they loved it. It also taught them very valuable life lessons.
Good luck, best wishes, and please let us all know how things work out!
Keep us posted. This post is getting a lot of attention because I think we all feel a sense of outrage on your behalf.
No way someone who needs 24 hour care including iv should be home unless you have the funds for 24 hour nursing.
Never let her come home!!! Please get your ducks in a row while she’s away - attorney!!!!!!!
I think a cholostomy is only done when a person can’t move their bowels, so that might not be possible.
The nursing home can not officially say you can be charged with neglect if you are not related or under a contract to care for her. Your boyfriend and his family… may could be charged. You are not neglecting her if you call APS to evaluate her situation and if need be they will step in to assure her safety and if necessary charge whoever should be responsible.
If you decide to stay in this situation, if it were me I would request having my name on a Healthcare POA so you can be more involved in the decisions… however, this would probably open yourself up for being charged for neglect if true neglect ever happens.
No one asked or expected the OP to put in an IV line for her boyfriend's mother.
IV management required skilled nursing care. Boyfriend's mother needs to be in a nursing home, and his mother was never your responsibility.
The muddy part of this situation in my opinion is that you are not married to the father of your children and you don't have a job to support yourself or the three children. If he is the bread winner and supporting all of you, I fear you don't really have a voice. On top of that, if your boyfriends name is on the house you are living in, and your boyfriend inherits the house his mom is in, you're doing all the work and are entitled to none of it.
I could never be that vulnerable to someone. Is there a reason you never married? That piece of paper would give you some claim to assets. Without it you are just working for free while your boyfriend and his mom own everything.
I guess my suggestion is to have a very blunt conversation with your boyfriend. If he is not willing to protect you and the children with good decisions, then you need to get a job and become self sufficient and leave. He will be forced to hire full time care for her or place her in a nursing home. And he will have to pay child support.
You asked how you should tell your boyfriend. Why don’t you show him what you posted here? Don’t bother with the answers from all the strangers, all that matters is how you feel. Your boyfriend may be so bogged down with his emotions and pure exhaustion that he hasn’t taken the time to consider the impact on you.
Your boyfriend has taken on the responsibility for his mother and you can walk away if you want. No one could blame you if you have had enough.
There are no wrong answers. This is your life and you only have one.
The strangers here are all giving her similar advice because from her original post she can't seem to see through her own mess. She's being treated like an absolute doormat but also acting like a victim in saying she'll be charged with neglect if she "Abandons" the mother of her BF. That's not true since she is not even related by marriage and is not her legal guardian. This woman is SO caught up in self-pity, being a "people pleaser" and resentment that she seems to have forgotten that she can simply say "NO MORE" and mean it.
Your boyfriend’s mother belongs in a nursing home but that is not your concern. Your goal is self care, gainful employment and a less chaotic life for the three children you bore by a man to whom you are not married. Your children deserve a lot better life than what you have settled for.
To have to seriously consider moving out, taking the kids, leaving a long term partner due to.. what? Him not saying No to his Mom?
Come on MR.ForcedCaregiver - Man UP!!
Mr, are you really willing to LOSE your family to avoid Mom's tantrum?
I do not feel sorry for Forcedcaregiver in the slightest. She is playing the role of victim and martyr.
This is a person who admits to having a trust fund. So really, she's not in dire straits and facing possible homelessness with her kids if she leaves. She is not dependent on her baby-daddy or his mother or anyone else for that matter because she has a trust fund. That means free money. That means your family is rich as h*ll and going to work to earn a living is optional, because you don't actually have to.
Please, do not be sad for Forcedcaregiver or feel sorry for her. She does not deserve your sadness or pity.
She's not trapped in a situation and dependent. She has a trust fund.
Here's an idea for her. Spend some of it to get a home for herself and her kids.
Demand that they show up because you have quit being their patsy.
They have 24 hrs. to show up or take/transport her back to the NH.
It doesn't matter what names they call you.
This situation is destroying you personally, your children, and your relationships.
Then call APS yourself, and report them for neglect.
Wow, I don't even know if this will work, but trying to make a point:
1) You have been talking to the wrong people.
2) The time for talking has passed.
im assuming after 15 years and 3 kid you love your boyfriend. And all these “LEAVE HIM” comments aren’t helpful
anyone telling you to get a full time job right now has no clue what’s involved in getting 2 kids to/from school, and have them home all summer. They have no clue the cost of childcare (for 2!). Mixin clothes for work, car, gas etc and…well it hard to break even. Lord help you if kids get sick
ok soooo. I totally get being in situations that start to avalanche, and even taking one step is tough
so.
1. Find out who/how/when made you the caregiver on any paperwork. Then revoke it. Don’t need to tell anyone beforehand
2. Tell BF you love him/or you don’t, but you cannot and will not continue. I like suggestion of a deadline
”as of 10/1 (or any date WITHIN 6-8 WEEKS) I’m no longer doing this. It’s ruining my life, health,relationship, kids lives, our money).
DONT BACK DOWN
3. Go WITH him to tell Mom. next steps are up to HIM and HER. Aunties can be told AFTER. By HIM. Don’t leave it for Mom to spin her tale of woe
4. Start looking for somewhere to move. He can go, or not. Tell him she can sell property to use $$ for HER care. Go tour places to live, find out what paperwork is required, rent prepay. Then tell BF he has 30 days then you’re taking step to go. Then start packing to show you mean it
5. Furniture/home goods etc can be found for next to nothing on apps Next Door, Facebook Marketplave, Goodwill, etc. if you can’t afford stuff, don’t be ashamed, stuff is out there.
one step at a time. But you’ve gotta be brave and stand up for yourself. Right. Now.
Isn't this just a different way of telling the OP to "leave him"?
However, there are things op can do.
OK, he could sue for custody but how would he win, visitation yes....but again with all his responsibilities how would he even have time for that? You are making an unpleasant situation into a dire circumstance and quite frankly it isn't. You have the means to easily leave. Either your BF comes with you or he doesn't. What exactly is the problem?
Forced Caregiver Freed.
Cast:
- 2 Aunts
- The 'Good Son' (BF)
- ForcedCaregiver (the OP)
- Grandmother (MIL, or BF's Mom as you prefer)
Grandmother got old & ill.
The Aunts poked their beaks in & decided NH was out & that The Good Son & OP should do all the hand's on.
** This is NOT their decision to make (& never will be) **
The Aunts may well fear a NH - they may think a son should do all the care. Whatevs to what they think! Their *thoughts* are not summons to be obeyed. Aunts need to stay in their place ie visiting relatives that care.
Grandmother decides to live in her home, not NH. This IS her decision (unless demented). She needs care, day, evening or both. She wants only The Good Son & OP. This is NOT up to her to dictate. That would be slavery. Grandmother needs to face facts. If she needs care - she arranges care from the options available. If that means paid carers at home or a NH, so be it.
The Good Son can offer hands-on care provided by HIMSELF but not for others, including the OP. She is a separate person & has the right to choose for herself. Again, otherwise slavery.
Chapter One:
Selfish.
Let's peel back that onion.
Is the OP selfish? For beginning to get resentful? For wanting to cease this ongoing, increasing task? For trying to put her own children first? For wanting to sleep in her own bed?
Or is this *reasonable*?
Is the BF selfish? For wanting the OP to caregive, lose sleep & wipe etc so he appear as The Good Son? So he can avoid the uncomfortable conversation of saying No to his Mom?
Are the Aunts selfish? For same? Wanting the son to do the caregiving while they appear The Great Caring Sisters. You betcha!
Is Grandmother selfish? For it is appears she cares NOT about the needs of her Son, OP or her own grandchildren as long as she has round the clock care.
Please let this be the takeaway: don't ever put up with being called SELFISH without pulling it apart to examine fully.
That word is weaponised to manipulate.
I wonder if the nursing home told you that you could be charged with abandonment if you didn’t take care of her as an attempt to keep her at the nursing home, WHERE SHE BELONGS!!!!
Hospital and SNF social workers piss me off! It seems their job is to send the patient home at all costs. I cannot tell you how many times hospital social workers have tried to coerce me into taking care of an elderly relative whose son and grandchildren didn’t want to do a damn thing to take care of her.
Putting all the other things aside, you are going to injure your back taking care of this woman!