My 95 yo MIL with moderate dementia is more like a very very stubborn and precocious 3 yo. My husband is her only living family. The issue is that anything we try to do to make her life easier or safer is rejected. We tried a medical alert necklace. NOPE, not wearing. We tried a shower chair after she got stuck in the bath tub. She drug it out and will not use it. Asked if she prefered a walkin tub and other alternatives. NO. Got stuck in the bath a second time. Went back over why she needed to use it. NOPE. she said she doesn't want to use it. We tried to have her go to respite care while we were on vacation. She pretended she couldn 't hear us. We got her hearing aids as her hearing is awful. Will not wear and usually unplugs so they are dead.
She was a registered nurse and thinks she knows more than her doctor, so does not follow his advice. She is on aracept and takes on an irregular basis. I tried to set up a pill organizer and she would not.
She says her hair is a mess and has not been to the beauty shop for 3 or 4 years. I got her sewing scissors out once and she let me trim it. I have offered to take her to get it cut and she keeps refusing. I asked her when would you like me to take you to get your hair trimmed right after she comments what a fright it is. Don't want to go. I said, I will shampoo it and cut if for you. Where is your shampoo. She puts a ton of hairspray on it and it looks like it has not been washed in a long while.. NOPE.
We installed nanny cams in her house and she hasn't disabled them. It has been the only thing she has allowed us to do. She doesn't often hear the phone to answer it. She sometimes uses a walker after she fell and bruised her face right before going to see her doctor.
We had to steal her car keys and have the state yank her drivers license because she wanted to keep driving after having 2 black outs and being detained by the police as a confused driver. She was upset about that for 2 years. She has no memory of the blackouts, the ambulance, the week long rehab stay.
I cook meals for her and take her to the grocery store. I have to help her shop and find things. Also I put things in her cart for her so she will have enough to eat. She doesn't realize how much food to buy or maybe she is just hoping I will bring all her food to her? I live about 3 miles away. She refuses to go to assisted living and the arrangement we have now mostly works when she cooperates.
How do we get more cooperation from the world's most stubborn woman? She was very stubborn before which is one reason why her husband left her. He is now dead.
You aren't going to get cooperation, so what is Plan B?
I’ve tried to get my mom the best care possible and accepted that I’m going to get complained and guilted at . It still sucks but I know she’s in the least worst scenario, and I’ve carved out some freedom for myself at least.
Sounds like your MIL needs way more help and you need your life back! It’s hard but stick to your guns changing this care situation, and remind yourself that the complaining will happen regardless.
You can outstubborn the most stubborn elder for the bigger benefit. I had to ou-stubborn my mom, and this is a woman who got kicked out of a church! I know you can do this….hugs!
The other approach is to work out what you are prepared to do – perhaps just go shopping with her so that she has food in the house. Expect less, and wait for things to change. Talk it through with DH. If you have cut out things that he is concerned about, you might split the tasks differently. Perhaps not – you can’t make him do more, and his approach is working so far.
Stop worrying, check the cameras, and wait for her mind (?) or body to force anything that really needs to be forced. If an accident kills her, at 95 she has had a long life doing exactly what she wanted. Not bad!
You say that your MIL will make "their lives unbearable" in a facility. They can handle it.
The bottom line is a three year old does not live alone. So why does your MIL live alone?
I agree with Need.
If I was your MIL's neighbor, and I knew the situation, I would be the neighbor that calls APS. It will be a lot better if you address the issue yourselves.
Your MIL should not be calling the shots, She can not make safe decisions.
And you are correct she will not be happy with you for putting her in a facility. But guess what ? Kids that don't want to go to school , still get sent to school.
It is a terrible situation, I know. I had a very stubborn and narcissistic mother that I had to put in Assisted living after she almost set the house on fire putting the wrong kind of lightbulb (and wrong wattage) in an old chandelier that could not take the newer kinds of bulbs.
My mother also had stopped all hygiene. She was throwing out the meals I brought her. She was living on cookies.
Soon you will need to place your MIL in a facility. Either when she ends up in the ER, Or you end up calling APS. Then sell her house to pay for her care. When that runs out Medicaid will pay.
It's also not fair to you or your husband. Your lives are being controlled by a 3 year old who is going on 2.
Margie,
I certainly hope that you take advice from a person who has been in your shoes. Way2tired is sharing her experiences with this situation and her answer is very wise.
You could also be right. At 95 would be it such a disaster?
She is 95 years old. She has a diagnosis of dementia.
Given those facts I think it is unlikely she will change for the better.
I think you already know enough of dementia to know that the only help now is likely for moderating your own expectations. I surely do wish you the best but I think that MIL is unlikely to change a whole lot.
Dementia robs people of their abilities to work from reason and logic and judgment; it takes away their inhibitions, and their abiliity to empathize with people; it messes with their concept of time, sleep patterns and their memory. You trying to engage with your MIL like she is able to "improve" herself will just exhaust you because she can't do it anymore.
And it won't get better or even stay at this level. She will continue down that path which may include things like saying unspeakable things out loud (cursing, the "n" word, etc), becoming incontinent and taking off her protective briefs or stripping; hitting people, screaming, and on). This is the trajectory that my 100-yr old Aunt took on her dementia journey. So, you and your husband need to decide what your future caregiving role will be: more aids hired in-home or transitiioning her to a good facility (where she will at least have more distractions, oversight and socialization). May you receive wisdom and peace in your hearts as you consider the options.
With all respect to Teepa Snow and I've watched her videos many times, she is completely full of crap.
Her methods may make a very nice interaction, but she doesn't deal with elders who have reached what I call the asinine level of stubbornness.
There's no way to out-stubborn the person. The only thing that works is depriving them of attention where safe to do so, or handing the situation over to professionals in a care facility. Sometimes even that doesn't break the stubbornness.
I've been the person responsible to get a demented, stubborn elder showered, diapered, taking their medication, and cleaning up the filthy hoard.
Sometimes there needs to be a little intimidation for the greater good and to get it done.
Teepa Snow's methods work great in some passive cases of dementia. Not in others and people will respond differently to family trying to get their care needs done. I've always started out as she instructs. Many times it resulted in being sworn at, hit, kicked, bit, spit at, contents of a diaper flug at me, along with dishes, coffee cups, and anything else the senior had nearby that they could throw or swing.
Start with Teepa and finish my way. Sometimes a person has to literally be dragged kicking and screaming into the bathroom to be changed. No one can be left in a mess because it's dangerous. This can take more than one person and when someone is at this point they need to be placed in facility care with a full staff.
Homes that are hoarded have to be cleared out and either help moved in or placement.
It's a rough was but often the rough way is the only way that gets it done.
Your MIL may surprise you and thrive living on her anger. And not give you the satisfaction of giving up. But at 95 she may give up anyway when she can't do things for herself no matter where she lives.
You’re also correct in saying that they know how to handle their personality. They are accustomed to dealing with various personalities.
So, I am sure that the staff takes everything they hear with a grain of salt. They get to know the family members and can see what is actually going on.
Plus, it won’t bother the staff as much because it isn’t their family member. They get to leave at the end of their shift and place work on the back burner.
You are dealing with a 3 yr old if she has Dementia. I so hope DH has POA. If so, read if its Immediate or do you need a doctor or two to claim she is incompetent to make informed decision. If Immediate you husband can place her in an AL now. Otherwise, he needs to get her evaluated by a Neurologist. This woman should not be left alone. It is no longer what she wants, but what she needs and that is 24/7 supervision.