Certainly happened to me - because I neglected my own medical check-ups - my neurofibromatosis tumours in my spine have become inoperable and I am permanently on a walking frame - and I am only fifty.
The saddest story I have heard was on talkback radio one night a few years ago - a 77 year old daughter was FORCED to be sole carer to her 97 year old mother with severe dementia. Because the selfish mother wanted help from no one but the daughter, the daughter was legally compelled to care for her mother - in spite of the fact she was disabled - and elderly - herself. The time came when the 77 year old daughter needed life-saving surgery - but she was not allowed to have the surgery as it would have meant her mother would have died because of being unable to look after herself - and unwilling to accept outside help.
I personally know a lady somewhere between 60 and 70 about ten or so years ago who was forced to be sole carer to a very elderly mother who very selfishly refused outside help - so this poor daughter was forced, for ten years, to be sole carer to her severely demented mother who was also extremely violent. Finally, the mother died and the daughter finally had her freedom to have her own life and start seeking employment. She got voluntary work. But alas, she got breast cancer and died. The breast cancer was caused by all those ten years of stress.
BTW, I suffered intense stress and abuse from 2002 to late 2014 --- first abuse from my late father who got severe dementia --- and then my mother who got severe dementia after dad died --- my doctors blame that for my now severe neurofibromatosis and eczema.
my sister does not want to help, she’s a lot like my mother, self centered, narsistic, I’m 55, never been married, the last 10 years have been a never ending nightmare, my mom now (82) has been diagnosed with stage 3 breast cancer after biopsy’s results, has had lots of health issues over the years, back surgery, gull bladder remove, quaddrouple bi-pass, colon cancer, been to ER numerous times from bad falls here at home this past year, broke back, another, broke wrist, another, cracked ribs and now this, I found a very nice independant care retirement community back in February this year, Mom loved it, sister (57) response was, if I think it’s so nice why don’t I move in, told her, If we live to be 80, we will both be in a similar place like this or for sure I will, anyway, my mother says now, when she needs a place, this is where she’ll be going, her answer is, that’s why she has me, to take care of her, gives me guilt trip, I’m full of anger, resentment, you name it.
I know I shouldn’t, but I think more often than not here of late that she passes in her sleep so that I can have some resimlance of my life back, I doubt I will ever talk to my sister ever again, and she claims to be so religious, I think she’s a devil in sheeps clothing, I’m sorry, had to vent s little bit, I hope your situation has gotten better.
god bless you and all who are in a bad situation, I would never do to someone I supposedly love the way mother and sister have done me.
I know I’m not alone by saying, I‘ll be glad when this is over,
thanks for reading through my ranting !
I am now seeing a talk therapist and was so lucky to find this person. She is close to my age [a senior herself] who had dealt with aging parents. So when she says "I know what you mean", she really does :)
When I look in the mirror I don't recognize myself. I have put on 30 lbs over the past few years, and it wasn't from eating. I just didn't have the energy or time to exercise. I use to be a gym rat, and to look at me now you wouldn't know it. I can't even put on eye liner, my hand shakes too much, so I look drained :P And my brain isn't as sharp as it once was. And there are times when I have trouble getting myself up off the floor when doing housework... oh fun.
Meds are helping calm me down at I was always shaking like a leaf, and I could kick myself for not trying them years earlier, but I was so sure I could handle it on my own. NOT.
Oh, if only I could get into a time machine [move over Sheldon] I would like to go back 7 years and do things differently. Such as saying "no" more often, and stop enabling my parents so that they could keep up their lifestyle while I had to change mine !!
And I can only hope to live forever out of spite after being the only one to give our parents a well earned break and their biggest wish - to be home as long as possible. My mom passed peacefully while I held her hand. I couldn't be with my dad when he passed as I had worn myself out so much I suffered a seizure and was in ICU when my sisters and brother had his life support pulled. None of them stuck around to be with him when he passed. And as hard as I tried to recover I wasn't released until the day after he died. He held on for 7 days after life support was pulled-no fluids, no feeding tube, after sustaining a massive stroke, surviving a month. Amazing how much strength he was able to muster-most healthy persons cannot go 7 days without fluid.
Now I am under threat of losing my home to my siblings as of 6/2/17 who have their own homes but just are h*ll bent on seeing me either homeless or at their mercy. This is why I have cancer and cannot even afford to get to any of my follow up appointments at UCSF for the past year.
Something has to be done about the legal system that assumes the caregivers have dark motives when all I've been seeing on-line and in my own case the opposite to be true. Siblings taking advantage of the child who full fills their parents desires.
National Cancer Institute
I have some sad memories and regrets, too, different from yours; but they're part of what made us who we are now. Sometimes I have not liked and do not like this woman I am; but ain't no whinin' about it gonna fix my situation. Only my doing something different is gonna get me different results, and I will advise anybody the same.
Hang in there, and be sure to make some time to reflect on why you chose the path you're on and why you remain on it; I think perhaps that may help you along the way.
God bless you and give you peace of mind!
I appreciated your long reply which explained a lot. Things that jumped out at me - your parents set aside money (many of ours did not). You "kids" grew up to be self-sufficient AND were taught teamwork... both non-existent in my upbringing. I was taught, as a woman, to depend on a husband.
As for teamwork, I have 2 older brothers (plus a 3rd who passed last October, my favorite brother, who stood by me)... and a younger sister who I am close to, but cannot count on. What were *we* "taught"? ... That MEN have the SAY!!... and women are better in the kitchen, staying out of it. I actually blame my mother as much as my father. So, while I recognize that you were brought up to speak your mind, even to THINK independently, it's something I'm still working on. But, I'm very proud to say, my adult daughter does!! And, I tell her often that it's a trait I truly admire! So I "get you", so to speak. And I'll admit that I jumped to conclusions reading your post. It came off to me as pretty cold-hearted. But, all of us have our own interpretation.
Earlier I read someone's observation on here: it seems the worse the original "family unit" was, the worse we handle the caring of our parents as they age. It's a kind of emotional battlefield to take someone who wasn't provided a secure, loving environment as a child, perhaps suffered emotional (or even physical/sexual) abuse ...and toss them into the role of care-provider to the person who didn't give that! When you're dealing with that kind of storm, any and *ALL* good advice gets dumped into the middle of the tornado! And, I can imagine that the outcome is never QUITE what the advisor expected. In my case, I can also add to the mix - adult siblings who fight against each other.
Thank you for your honesty. I appreciate the last paragraph and believe you're absolutely correct... without GRACE we are hopeless. Here's to all of us doing the best we can with what we've been handed. Just keep in mind some of us aren't given the proper tools. Part of what has been thrown onto our plate is the process of discovering those tools as we go along. It requires digging into the family backyard.. and sorting through it to find anything worth salvaging. I, for one, am still in that process. My hands are dirty, my body aches, and my heart is saddened by the memories I've had to throw aside.
My concern about this topic centers around the use of the term "force" and its implications. If a care-giver feels "forced" to perform, I think there's a serious situation that needs to be changed. Maybe the care-giver needs to consider that there is more than, as you said, the "ONLY CHOICE" left. Not to be snarky, but "choice" implies at least two options. Now, you may have made the choice to be a care-giver rather than walk away; but IMO, there needs to be a recognized, hopefully well-thought-out and continuing reason for that choice or the person in need is going to suffer for it as well as the care-giver.
As a recent example, cdnreader, who did not claim to have been "forced" into the care-giving role, posted yesterday "I was locked in a terrible pattern," and said that he/she could see in hindsight--and I'm paraphrasing--things that could have been done better.
A feeling of being forced or having no way out of a situation seems to me to be an indication that a person's reasoning abilities are compromised, and that leads to poor decision making, doesn't it? Including not recognizing that the person you are caring for isn't going to have your help anymore if you kill yourself.
Since you asked about my personal situation, I'll tell you. The skills required to do the work of a hands-on care-giver are exhausting physically and mentally and are outside my abilities. However, my experience includes making sure to the best of my abilities that my parents were protected from harm and received the care they preferred as long as they lived, taking responsibility for the complete care of my quadripalegic brother-in-law after my sister passed away (as so many care-givers do) before he did, and currently providing support for my husband as he helps his family care for his elderly dad on Hospice with Parkinson's disease. Incidentally, I did not do any of this by dumping my freely accepted responsibilities on anyone else or complaining about their volunteered help. I did it because I cared about my parents, my brother-in-law, my husband, and I wanted to do the best I could for them. Was I perfect? Heck, no. Was I even sometimes resentful? Yes, but I think it would have helped me not to feel that way if I had more often looked back on why I made the choices I made. I regret that I didn't understand that my sister was killing herself taking care of her husband; and I hope I can stop someone else from going down that road.
As far as being judged or having someone "to answer to," you gave me a dose of that! I can only suggest that it has been helpful to me to remember that not all decisions are/were clear and easy to make. We do the best we can. That's the best we can do. Sometimes, we'll be wrong. Anyone who wants to berate me for not doing what they want done better than I'm doing it is welcome to do it themselves, and I will applaud them for being gracious enough to step up and do a better job than I can. That's it. No guilt inflicted on me from anyone else as long as I am confident that I'm doing what's right to the best of my abilities; and I'd advise you to feel the same.
Of course, we want things to be better; but we can't change the past to make today different. We can only do the best we can today to prepare for a better future. Whining is just not going to make tomorrow better, so why bother?
Admittedly, I was blessed to have been brought up learning to take responsibility for myself and my own actions and decisions. Our parents taught us this by setting a good example, in part by preparing financially for their old age. They didn't bail any of us kids out of jail or buy us cars (not to mention cell phones) or even send us to college; they paid off their mortgage and saved their money in case they would need it. As a result, the four of us kids learned to be self-sufficient and were happy to do what we were each able to do to help our parents without fear of losing an important inheritance. The two of us who were able to do more to help were not resentful of the others, and the others were appreciative of what we did. I was as transparent with my siblings about my parents' financial affairs, which I watched over, as my parents wanted me to be; and my family knew I was trustworthy because that's how we were brought up. I know not everyone has the benefit of this kind of up-bringing, and I would love to be able to impart the knowledge it gave me if it can help someone else.
So, that's my story, since you asked. It's not unlimited finances, it's not that I don't care. If there's a magic "solution," it's the grace of Jesus Christ, who created us each to be different and to help each other in His name, and who died so we could know we are forgiven even for our bad choices.
Spring is here, and it's time for renewal for you, too. Perhaps you can get outside and find time now for reflection, not on the past, but on what you need to do next.
Spring is here, and it's time for renewal for you, too. Perhaps you can get outside and find time now for reflection, not on the past, but on what you need to do next.
I'm so sorry for all the pain and sorrow we all go through as caregivers. Its not an easy role. We all try to do our best. There are no easy solutions.
My dad wanted to stay at home and I wanted to support him. It was hard and I did let the anger and resentment get the better of me. Looking back I wished I had accessed more supports for him and myself. But I was locked in a terrible pattern.
I do feel I am suffering from mild depression. And since his passing, I feel its getting worse. I know I need to do something now to help myself.
Take care everyone. Thank you for sharing your stories and trying to help other caregivers.
I have only been part of this group for a little over a month (wish I'd discovered it sooner!!!)... And I've never read a post that I couldn't relate to...(until now, that is)... And this the very first time I find myself wondering about the person posting! Never before have I said to myself, "Who is this person???".
Perhaps you are an only child of a very small family? Maybe you don't have anyone else judging your actions? Or maybe you are the only person who is "in charge" of the loved one requiring care? Do you have no other people to answer to? to give account to, to justify your actions to?.. Or, ...maybe you JUST DON'T CARE? Or is it that you have endless finances? so finding care for your loved one doesn't require much thought, action on your part, or heartbreak at making the ONLY CHOICE left?
Truly puzzling. Please clue us in on your situation. Because it is baffling to me why anyone would come to a "support group" unless they need support. Yet you seem to have all the answers & have things so figured out. You seem to be incapable of putting yourself in the shoes of those of us pouring our hearts out here. That is what is so baffling.
I'm sure others besides me would love to know your solution! It appears to leave you "off the hook" for you can question why in the world we would put up with all that we do. You seem to find it incredulous that so many of us are suffering through this process.
I will be anxiously waiting for your reply.
The thing that use to get me rattled, any time I was grumbling about caregiving my 90+ parents, was when a person would say that my parents took care of me when I was young..... I finally learned to fire back and say, "yes, they did take care of me, BUT they weren't 70 years old when I was a child, big difference".
My migraines are much worse and more frequent. I'm afraid that i might wind up having a stroke like my mother and grandmother. I've been depressed before, so I can't attribute that to caregiving, but had been free from it for over twenty years, and now it is getting worse. The only reason I keep going is that it would hurt my daughter and she would have to take care of mom, right when she has started college and is enjoying her young adult life. I've also hurt my back and shoulder lifting mom when she fell - the back healed, but the shoulder never did and never will. I'm gaining weight because I am too physically and emotionally exhausted to work out. The last time she fell I told her that I was not going to even try to help her up - and called the paramedics right away.
I think I have PTSD from caregiving. I dread the sound of the phone, dread mom waking me up at night - it took a paid caregiver telling her that she could not do that to me or I would collapse and she would have to go to a nursing home - for her to pee in her diaper at night. Twice I almost wrecked the car driving home from work because I was so sleep deprived. When I'm very stressed I can't sleep. Actually not PTSD but something we don't have a name for because there is no post about it - the stress is relentless.
I pray every day for the grace and strength I need. She is going to go to respite for two weeks this summer - I need a mental health break. On another thread I read a post by a caregiver who put her mom in respite for one week every three months - and I think I need to do that if it means reverse mortgaging the house.
No way will my daughter be allowed to be a caregiver. If I have a stroke, I want her to put me somewhere. If I get cancer, I have decided that I will not have it treated, except for pain relief, and move to Oregon. If I feel I'm heading for dementia, i will go to Dignitas, which is a group in Switzerland that provides assisted suicide for non-terminal people. I can understand why people want to hold on to life as long as possible, but i don't.
Thanks to those who posted about how caring for an elder is nothing like caring for a child. Another way it's different is that child care issues are recognized, but elder care isn't. We have to keep our caregiving secret or else risk losing our jobs - at my work it's acceptable to miss a day once in a while for child care, but for elder care, not. At least I have a job even if it's just part time - it gets me hours out of the house, and I hire a sitter so I don't have to worry about mom. I don't think anyone who has not been a caregiver can understand how difficult it is. Maybe some day I'll learn to find it enjoyable and rewarding but now it's just exhausting and stressful. I don't know how those of you who do this 24/7 can take it. Thanks everyone for being here. This site is a sanity saver.
Just as an example of the cost, I recently investigated a long-term care home not far from me. I already know that some of these charge a basic rent of approximately $3200 per month which includes 30 minutes of care a day. Any further necessary care would be charged in 30 minutes increments. My mother is permanently in a wheelchair which she no longer has the strength to move on her own so she has to be helped for dressing, toileting and getting into and out of bed. Her vision is poor and getting worse so she can't indulge in any thing to pass her time with. She has arthritis in her hands as well so she needs help putting toothpaste on her brush. Those extra charges would add up quickly not to mention the extra fees for a person who is incontinent and needs adult diapers.
If someone has a parent who has demeaned for their whole life, who lays on the guilt with a trowel and who is mean and bitchy on top of that, life becomes very difficult. It would be inhumane to walk away from an injured animal and leave it to die alone. If the animal was in pain it might be snarling too but most of us would make some effort to see that care was given to that animal. If we would not do that for an animal, how would a person with any ethics at all do that to a parent?
I wonder where anyone could get the idea that assisted living facilities or nursing homes are available to anyone who wishes to put their parent in one, megan2014. I am not trying to be nasty but it just is not the case.
Bast, I understand that you are a tortured soul and overwhelmed by pain and adverse circumstances. I, too, felt despair, hopelessness and rage at life circumstances during a dark period of my life. However, what helped me was a change of perspective on just who causes all that suffering, and my perception of who God is. I have come to the conclusion that the devil, or evil, is the root of all suffering. God isn't doing these wicked things. I must admit, your statement of praying to the devil was quite jarring to me. Much of the suffering we experience today is caused by humans, not God. This can include self destructive lifestyles within our own lives or harmful/evil behaviours from others. Our life on earth is temporary, and Satan is alive and well. I do not believe God is this supernatural power tripper who enjoys seeing people suffer. However, He gave us free will, and that's why there is so much destruction and pain in this world. When I changed my perspective, I became so close to God and, yes, I still suffer, I still become enraged, but through the sacraments He is present and He is with me all the time. If I didn't have my faith I truly would be up the creek without a paddle.