There isn't much on here about husbands that care for their wives. I expect my wife has Parkinson's, but there are no neurologists that will see her until 5 months from now (July). In the mean time her tremors continue to multiply. It started with her left arm/hand and now has spread to her mouth/jaw and right hand. Her memory is gone. I will put on an overnight diaper, but she gets up an hour later and replaces it, with much difficulty. Any type of sexual contact is gone. I do everything for her. I seldom get more than 30 minutes away from her when she gets lonely. We have no friends, and any family is at least 3 hours away. I'm isolated and burned out. I can't afford to have someone stay with her and insurance/medicare won't cover anything, I'm guessing until she is diagnosed? Our family doctor gave up on her, thus the referral to a neurologist in July, where I am hoping she can get some help with her symptoms.
We've only been married 6 years. She is 75 and I am 65. I never saw this coming. I am committed to the marriage vows, better or worse. I guess I need some advice as to how much is expected of me.
He was highly recommended and then sat back and went to sleep: totally disinterested as there is no benefit to treating someone with an incurable disease. I repeatedly asked him for a letter describing my husband's Alzheimer's, but he never responded, then I asked my husband's Primary doctor to get something in writing from the neurologist and that never happened: my husband believes the diagnosis in not real.
Appointments will be set this week for a brain MRI and a Zoom meeting with the Geriatric Psychiatrist. I cannot fix my husband, but I surely can advocate for him.