Follow
Share

I just realized our life has become that of caregiver/partner no longer partner/partner and I need help.

This question has been closed for answers. Ask a New Question.
Find Care & Housing
I agree that you will likely find comfort on this site. I can, however, suggest wellspouse.org for spouses as an add-on. I have no knowledge of how many partner/partner relationships are on the WSA site but you may want to check that out, too. I think it's often helpful to have a good mix of support, so please keep coming back to agingcare, as well. There are many caregiving spouses/partners in this community.
Carol
Helpful Answer (0)
Report

Chronic Fatigue is one of the worst illnesses, either to have to be a caregiver for...like Chronic Lyme, it's mostly invisible and leads loads of folks to assume that "it's all in your head" or that you're a malingerer. You are soooooo welcome here, we've all had that "live changes" moment and can be supportive of you in your journey. Is there a Chronic Fatigue support group in your area that you can tap into? Might be worth a try. Come here, vent, whine, support, anything you like. Hugs!
Helpful Answer (0)
Report

Thank you for your kind welcome. I was headed to church, few nasty words exchanged and really, anyone who sees my circles will wonder why I've been crying. We are not old, I am 58 and she is 62. Not what retirement was supposed to be. Worse is that no one knows what my life is like. Really, a couple of naps are not going to make her well.
Helpful Answer (0)
Report

welcome, you are indeed welcome to join us here as we offer love and concern for all
Helpful Answer (0)
Report

There is a group on Facebook called Memory People. You can send them a message from their Facebook page that you want to join and they will let you know you've been added to the group. Your posts are completely private, only available to other members. It is a FABULOUS supportive knowledgable group! Over 5,000 members currently.
Helpful Answer (0)
Report

Digger,

My gay partnerships were long ago. Now age 70, I think seeing a woman of my own age decline, would be harder than seeing a man (my current partner is male).

I think Jinx is right. When a disease is incurable, especially in old age, suddenly a lot of priorities have to change. I'll never be able to cure his bad habits, so there is no point trying! But 'humoring a lunatic' isn't the right attitude either, since H is not demented. Nor is your partner, I hope?
Helpful Answer (0)
Report

It is natural to feel some resentment when I find myself taking on more of the responsibilities that were and "should be" shared. That resentment is tiring and demoralizing, and I'm trying to avoid it, to stop resisting the fact of the disease and his lost abilities. Then there's the ingratitude....

My point is, don't blame yourself if you can't act like a saint all the time or have a constantly loving heart. Do your best, which may be pretty mediocre some days, forgive yourself, and forgive her. Then you are more able to enjoy the good days.
Helpful Answer (2)
Report

Sorry? You should read my posts! I feel like I'm whining all the time! Everyone here is so supportive.. If you write a new question referring to CFS I bet there is someone here dealing with the same issues...hugs..
Helpful Answer (1)
Report

Thank you for welcomingme. In anger a few weeks ago my partner told me to start acting like the caregiver I was. Until then I thought I was helping her until she got better. Of course I knew she wouldn't get better. Before you compare her illness to what all of you are dealing with let me explain. She has, in easy terms Chronic Fatigue Syndrome. That is more then just being tired, it is physical/mental/emotional, she is on disability because she can't work and often can't get out of bed or carry on a conversation.

Thanks to reading various threads here for the first time last night in bed I was able to look at her as the woman I love that I am the caregiver for, not as a rejected lover and actually slept peacefully instead of going to sleep in tears.

I AM going to hang with you guys, hope you won't be sorry you extended such kind and welcoming comments.
Helpful Answer (1)
Report

My husband (we're both 70) is needing more and more caretaking, and I'm learning to give it. It's a weird roller coaster, between his bad times (mimicking dementia) and his good times (normal but weak and fragile, and telling me to back off).

If you click on my icon and then on 'activity', most of the threads I'm active in have posts about spouses. But as others have said, on most questions it doesn't really matter. A care receiver is a care receiver, whatever relation and ages you both are.

Welcome!
Helpful Answer (2)
Report

There are threads on this site that refer to spouses or partners. I am a spouse and have always felt welcome.
D: Caregiving for a husband/spouse seems to be a missing topic. Lets get our two words in.
https://www.agingcare.com/discussions/caregiving-for-husband-spouse-155578.htm

There seem to be lots of christians on this website, but most seem to be "real" christians, lovers, not judgers. If anyone picks on you, let me know, and I'll punch them out!

There is much more in common in the caregiving journey than there are differences. Even if you find somewhere more specific, don't deny yourself this community! The wisdom and support are incredible.
Helpful Answer (3)
Report

Thank you, thank you, I couldn't take one more slam today.
Helpful Answer (0)
Report

YES some of us are gay partners. ALL of us have the same caregiving problems. That is what we share here.
Helpful Answer (0)
Report

Gay partners? Anyone?
Helpful Answer (0)
Report

Some of us are partners, some spouses, some siblings, some children. We are all in the same boat.
Helpful Answer (0)
Report

I'm caring for my husband, and this group welcomed me. I haven't found a group specifically for partners. Let me know if you do, please.
Helpful Answer (0)
Report

Thank you, I feel very alone and it's ok now that I know why, just a hard realization to come to.
Helpful Answer (0)
Report

Digger you are never alone. Reach out to us with questions are share your knowledge.
Helpful Answer (0)
Report

This question has been closed for answers. Ask a New Question.
Ask a Question
Subscribe to
Our Newsletter