I'm an only child and live long distance. When I call Mom the conversations end up with her crying. Should I call?

It's pretty clear you've thought hard about the decisions you've made. Your original question wasn't about your mom's living arrangements, it was about how to handle contact in such a way that it's a good thing, not a source of new upset. Right? So let's get back to that. Something I'm learning is, how to think differently about the situation where there's memory failure vs. the situation where there's not. If the person doesn't remember something key, like that their spouse died for example, then it's upsetting to them to insist on the truth, because they keep getting awful "news" as if for the first time. And you can't really negotiate with them. But if your mom is not demented/incapable of remembering, then you can still have honest and adult interactions based on the truth. And you can ask HER for help with your decision: "I want to see you and talk to you but I know it also brings up painful things. What should I do? If I visit you it won't be to take you home, is that worse or better than my visiting you? What if anything can I do for you? Do you like it when I send cards or does that upset you more?"
Another thing is, the clearer you are within yourself about WHY you are visiting her or calling her, the easier (or at least the less difficult!) it will be for you to handle her sadness. So for example: If you are visiting her to try to make her happy, then you've succeeded in that goal if she's happy and failed at that goal if she's sad. That sense of failure adds to your own unhappiness at the situation. AND it makes you question your own behavior even when it's got good motivations and you're doing a good job. If you're visiting her to check on the situation and see for yourself how she is, then you've succeeded at your goal whether she's happy or sad. And you'll be just one little bit more able to stay centered, yourself, which will make you more effective at handling the situation -- including better able to keep her from getting upset. It's ironic but true that you will be able to keep her happier if you're not as triggered, yourself, when she's unhappy. This stuff is so, so hard! Good luck.

I truly would love to bring Mom home to live with me or at least near me. We live across the country from one another (about 3000 miles apart). Her choice. After Dad passed away in 2006 I talked till I was blue in the face to try and get her to consider moving. She didn't want to or was too scared. Her dementia/short term memory loss began manifesting itself after Dad passed. Caring for him was her last responsible job and she did it with perfection. After that I couldn't get her to look forward to anything new. Mind you she disliked the man, but felt it was her duty.

I don't know how I could even begin an undertaking of this magnitude. She has a lot of health issues. An all day plane ride with her history of blood clots would be unadvisable. In an automobile, driving would be almost as bad and would take us weeks, not to mention the expense. My husband and I aren't getting any younger either. I even thought of renting or buying a motor home but financially that is out of the question. I chose to live closer to my children when we retired. We all live on the West coast. Mom and Dad chose to live on the East coast. Now we are stuck in this terrible situation. If only money were no object or I had a magic wand, I would charter a plane and whisk her off to be closer to me.

I even contemplated living with her in her home before she went into the nursing home. I spent about 3 months with her. That made her very uncomfortable. She felt she was taking me away from my husband. He never complained and is totally supportive.

In a perfect world I would love to do what you suggest. Yes, it is sad. I often fanticize about how wonderful it would be to have Mom close to me. She has never seen her great grand kids. Thanks for responding.

JRW,
Oh my goodness! The only thing I have to offer is this - My Mom lives in assisted living with Alz and other medical issues for 2 years now in Pittsburgh - I'm 350 miles away in Jersey. She did not want to move here because of my brother and his kids and I understood, although being her daughter, I really wanted her to be near me. I try to get home (Pgh) often to see her but the longest stretch is always the winter months. When I do see her we both realize how much we miss each other - and frankly, her more than me as she needs me more now. If I could, I would move her here close to me whether she agreed to or not because it would be the best thing for HER. She hardly leaves the facility anyway, so she really has no connection to Pittsburgh and when I do take her out she doesn't recognize much - so what difference does it make. But, she has my brother and that's the way it went. It's family, family, family. If you are the only child, my advice is to do what it takes to bring your Mom close to you so you can better care for her. She will feel so much more secure knowing you are close by and stopping in to see her on a regular basis, bringing her what she needs. Tough times, tougher decisions.

Before your visit, you need to decide how far you want to go, if at all, in making changes to her living environment. If she is unable to live with you or near you, you need to avoid any conversations about you removing her from her present home. Try to impress on her that you are coming for a visit and will have to go back home afterward.
I have been going through something similar with my Mom. When she gets these irrational things in her head there is NOTHING that will change her mind. (My Mom does not have Alz. but it is no easier)
No institution will be like home...that stands to reason. However, how we all approach our living situation will make a big difference in our success. The second part is that no one can live our life for us or make things better if we do not participate in our own happiness. I know this because I have been w trying to make things "perfect" for Mom for three years now. In return, all I have gotten are more "to do lists."
Btw, is your Mom physically healthy enough to live in a senior apartment with a live-in caretaker? If she does not need a lot of medical care, this may be an option. There are in-home caregivers who specialize in cognitive care. That way your Mom is in her own space, but has the caregiver there to ease your mind. The caregiver can also take her to doctor's appts., etc.
good luck

JRW,
Everyone's situation is SO completely different; there are no "one size fits all" solutions. What works great for one may not at all for another. And unfortuately, as Dr. Laura would put it, "some things just can't be fixed, only endured."

It really sounds like you have explored all kinds of options and solutions and your heart aches. Be careful to not lose yourself in all of this, because if you do, you will have nothing to give to your mom. I agree with Lilliput's comment: "The second part is that no one can live our life for us or make things better if we do not participate in our own happiness. I know this because I have been w trying to make things "perfect" for Mom for three years now. In return, all I have gotten are more "to do lists."
I too am an only child, looking after a challenging dad with HUGE medical problems and who has no other family or friends. He has ALWAYS been what I call a "self-imposed hermit." I try so hard to make him happy and become very sad when I cannot. It IS very difficult. I try to point out all of the positive things that are going on but sometimes people don't want to hear that. It takes more work and effort and it is easier to just be negative. Fortunately, he does live close so distance is not an issue.

If you try and uproot her and force her into something she herself clearly does not want, you may find the situation escalate to a whole new level that you couldn't have anticipated. She clearly does not want to interfere with your life, as she was uncomfortable when you lived with her for 3 months. There is a real trick to "honoring your mother and father." Sometimes there are no clear answers.

Perhaps her feelings will change with time and you can keep on encouraging her to allow you to move her closer to you. Continuing to say "how great it would be if we all lived closer" might start to have an effect on her, especially if it can be viewed as a solution when she has her fits. I understand the actual move will be a challenge and for that I wouldn't know what to do. Even a cross country drive is not perfect as sitting for as little as 2 hours can set up a clot. I feel for you.

Try not to feel guilty. Again, quoting Dr. Laura, guilt is a feeling we get when we have done something wrong. Clearly, you have your mother's best interests at heart. You can feel sad, but it shouldn't be guilt. I too struggle with this.

Hang in there and keep us posted.

Thanks so much for your reply. During her recovery from the first brain hemorrhage and blood clot, when she was well enough, we explored the option of assisted living. Went so far as to pick out her apartment, paid for everything and started to pack up her house. It tried to take it as slow as time would allow, but when it got down to the wire, she went into a terrible "funk", got extremely anxious and backed out of the move. She paniced at the thought of getting lost, eating in a dining room full of people, etc. etc. With each fear she was reassured that she would have someone to help her get used to the place and she could eat in her room. She would even get angry when a caregiver or nurse would come to the house to assist us while I was there.

As I mentioned, Mom hates people being around her, touching her, watching her or telling her what to do. There could be some deep physcological issues underneath it all and I know as we age, these problem can get worse. So moving her somewhere has been out of the question and moving her back into her old house is no longer an option, since it has been sold.

I haven't seen her since October so I don't know how much she has physicall deteriorated since then. I know she has lost about 11 lbs. She walks with the aide of a cane and or a walker, can take care of her personal needs. Refuses to let anyone help her bathe as she feels that are getting a thrill looking at her body. It embarrasses her to no end and I realize that is part of her dementia and delusions.

There is also the cost factor. We have applied for government assistance in the form of medicade and/or VA since she is the widow of a verteran. This nursing home accepts this type of payment. I thought private care in the home or most full time caregivers in the home are not covered in this manner. Mom would need 24 hrs care and I think if left to her own devises she would fire anyone that was hired to come in and care for her. Because of her aphasia, she would have a difficult time explaining what she wanted or how she felt. I did say she can seem to communicate with me, but Mom and I were always close and I kind of know what she wants without her even having to say anything.

After Dad passed in 2006, I wanted so much for Mom to move closer to me. My husband and I would have been able to it all for her. She kept refusing. I know you understand when I say I talked myself blue in the face to get her to move. She was too afraid of change to agree even then. In 2008 I started the process of helping her with her finances. She has always been independent and controlling (not in a terribly negative way) of her own life. She feels she has lived a full life and it is time to go. However, her body is remaining strong and her mind is going and the loss of control is very difficult. I know that she knows this is happening.

Well I have rambled on long enough. Thanks for your suggestions. I do so much want to see her, but don't want her to be upset. I realize I have no control over her emotions, but don't want her to have a complete melt down when she sees us. I know she is going to ask questions that I will not be able to answer honestly.

I will most likely still call her. I had to almost hang up on her the last time we spoke, because I couldn't redirect our conversation. I don't like doing that, cause then we both have a bad feeling. She may forget (sometimes I think she remembers the negative interactions more than the positive ones) but I don't and then I am sad. I said I was going to end this note, now I am. Thanks all for your thoughts.

Cant you bring her home, this is so sad :(
Dont ever ignore her by calling or visiting less. How would you feel if you were already confused and scared, and in a strange place, I agree with Lilliput, "theres no place like home" and our parents were there for us, we must be there for them. She is continent and in early stages, my Mom is home and incontinent, needs help with everything but we spoil her rotten with family time, laughs and singing. I hope you can reconsider.

goodMorning JRW... I'm sure the calls are difficult for you especially when she starts crying.

You might try sending her a cheerful, fun card or small gift once a week. Patients love getting mail and this would be less stressful for both of you.

Great Memory Card Games and Memory Jogging Puzzles online that will ship in your name.

It sounds to me like you're might be trying to wiggle out of having to call your mom. Of course you should continue to call. Perhaps what is needed is for you to figure out what sets off the crying. What's her overall state of health-- is she ill, suffering from dementia or perhaps very frail? Do you and she fight in these phone calls? Is she longing for something that's unrealistic, such as you moving back home? Is she depressed? Is she living alone and isolated? Is she in a care facility with plenty of people around her? How often do you visit? How often do you call? Tracking the answers to these questions may help you come up with a plan for her that will allow for phone calls that don't end with her in tears and you wanting not to call again.
Joanne

A couple years ago, it was decided my father and his wife (with ALZ) could not remain in their Leisure type world apartment as my older brother was moving to Mexico and they would have no family around. My younger brother moved them from Virginia to St. Louis to an ALF. He brought them there by train.
That may be an option to look in to.

Little Bro oversaw the care of my father for 2 years until his passing last November. My step-mother is being relocated by her son to a faciity in North Carolina. (My 84 year old mother lives with me.)

It is very hard seeing our parents age - losing control of their bodies and senses. But, even harder for them - depressing & frightful.

Good Luck!!