She has dementia and I believe she really does think she took them, but I'm sure she is remembering taking them on a different day. I say, "Mom, if you took your pills, why are they still here"? She has lots of answers such as "someone put more there", "that's a different dish" or my favorite, "Why don't you believe me? I know I took them". I tried to reason with her, tried to scare her that she will get sick if she doesn't take them, tried waiting until lunch time and give them to her then, but she can be very stubborn and keeps insisting she took them.
I leave them out for her when I go to work, she is usually still asleep and I have a caregiver come in about 1/2 hour after I leave and she lets me know if Mom didn't take them (again), she also tries and is sometimes successful getting her to take them at lunch, but not always.
She has lived with us for the past 5 years and the struggle is only getting worse. I ask her "Why would I lie to you? I'm only trying to do what's best for you". Her only response to that is "Why would I lie to you? I know I took them".
Night time is much easier as my husband and I are both there to make sure she takes them it's just the morning pills that are an issue.
Does anyone have any suggestions on how I can convince her to take her forgotten meds?
Thanks so much
Tired of arguing
While you are talking to the doctor find out what the pills are for and what they are treating, what the outcome will be if she does not take them as scheduled. You want to be prepared for a worse case scenario.
Also ask the pharmacist about side effects from each pill and if there are any combined side effects? Some medications cause significant side effects and that may be part of the reason she is resistant to taking them.
Another thought, from your post, it appears you leave the pills out for Mum. Perhaps you need to change the pill taking routine? What about taking them into her bedroom, waking her and giving them to her? Or setting the pills in the dish, but putting them in a different place so the aid who comes in can give them to her?
We paid caregivers have very strict rules when it comes to medications, and it's far more common for people to get stroppy with us because they think we're being obstructive than to worry because we're too cavalier. But anyway.
One rule is that we may not dispense medication for the client to take "later." We dispense, we pass, we observe, we record. If the client changes her mind after we've removed the medication from its container and decides not to take it, for example, it's a major pain in the behind - lots of paperwork!
But there are sound reasons for the protocols, and you've highlighted one. Don't leave medication out for her to take because it leads to confusion, uncertainty, ambiguity - all very bad things in the context. Either wake her up and give it to her with a nice drink, or leave it for the caregiver to handle.
A bit of formality might make your mother more compliant, as well as reducing the chances of getting it wrong. Use a proper chart and record what's given. If you Google "MAR chart templates" you should find plenty to choose from.
I used logic to help her understand she wasn’t taking them by comparing the number of pills left over to the calendar days left before a refill was due. Lot more pills left than days until a refill. That was early on. That pill was so important, had to be taken on an empty stomach, no food or sweetened coffee for 30 min etc. She simply couldn’t remember she hadn’t taken it. It’s like you said, she had taken it so often, it seemed she had.
She did understood that she hadn’t (couldn't have) because of the math. We went on for years with the pills being a bit of a struggle with one solution working for awhile and then no longer working as she further declined.
The last thing I tried that still works for me is giving the pills in separated batches. They weren’t as intimidating to her. She would have forgotten she had taken the first batch and so was agreeable to the second one as it was just a couple of pills I would say to minimize the importance.
I have always refused an am/pm dosing as she had no one to give evening pills to her in earlier days. Occasionally she had an antibiotic that required an evening pill. Twice a day might be ideal, once a day may be sufficient. I never had a problem getting the doctors to prescribe this way. But not everyone’s health issues allow.
Tothills suggestions are good. At 98, I would want to know which of the pills were absolutely necessary and why and offer those first. Then I wouldn’t sweat the small stuff. Some can be crushed and added to a favorite food but when she doesn’t eat the food you just have to let it go and try something different. DH aunt needs to take Metamucil powder daily. She would struggle with getting that down. Now we just stir it in her coffee and no more struggle. If she doesn’t drink her coffee that day, it’s ok. She will drink some tomorrow. It’s what she does most of the time that matters.
Your mom has lived to 98 and has obviously done a lot of things right to have done so. Try to let the worry of it go. I know it’s hard to do but sometimes we forget that they are in decline and things will change regardless of what we do.
I recently listened to a podcast where I learned that aricept slowed the pulse! I was so upset about that because for years we had to adjust her BP tablets daily to keep her pulse at an acceptable level. When she came off of the aricept the pulse went up to a level high enough we could give the same BP meds routinely. She is on hospice for dementia. We know Aricept won’t cure it. We had considered that it slowed it and perhaps helped keep her moods stable so her geriatrician continued to prescribe. When I found that what it truly slowed was her pulse I felt so foolish. Here I was worried about a possible pacemaker when all I needed to do was stop giving a pill that didn’t work anyway.
Each persons situation/health concerns are different but when you start noticing you are having to argue or persuade, it’s time to change things up. Its a fine line. We work to keep them well taken care of but when they push back it’s time to regroup. I hope you get some suggestions that help.
My best to you.
In the end I bought a timed dispenser, You can set it to dispense up to 6 times per day and only the the tablets for that time are accessible. Everything else is locked securely away. This way I can tell that she's taken them (there is very occasionally a tablet left, which she has missed), but the important thing for me, is that she can't get to the others.
Really though think about this:
They have a fatal brain disease. So if he gets too many of one or none of one, they still have a fatal disease..that will end sometime soon. We took my dad off cholesterol meds as he was extremely lethargic and unstable in that one. Lipitor made him even worse with his dementia.
Ask the doctor which ones can be taken away and look into palliative care.. just keep him safe from injury and let his body continue the fatal process... Many times we think we are doing them a favor by prolonging the inevitable. We all are going to die.. why prolong it with heart diagnostics, Expensive scans, and non life saving procedures when dementia is going to eventually take them...
Spend each day enjoying the time left, stop arguing and just do puzzles. Listen to music or chat. No more struggles , just peace and loving times. Who really cares if they took their cholesterol or blood pressure pill.
Signed, a nurse who wants to make the best of the final days and months. Praying you find wisdom and peace.
Thanks
Thank you,
Thanks,
You will have to physically give her the medication from now on. It will have to be a part of a regular daily routine.
To make it easier, get an Alzheimer's clock, and set her medication times, that way, she cannot argue, because it's "medicine time."
https://www.amazon.com/SSYA-Newest-Version-Clock-Non-Abbreviated/dp/B07C2LL3XF/ref=asc_df_B07C2LL3XF/?tag=hyprod-20&linkCode=df0&hvadid=271614679167&hvpos=&hvnetw=g&hvrand=12794554672417560685&hvpone=&hvptwo=&hvqmt=&hvdev=m&hvdvcmdl=&hvlocint=&hvlocphy=9031108&hvtargid=pla-465860469978&psc=1
We started handing her the meds at specific times two days ago and so far it's working. I'm sure there will be times it doesn't but it's better now.
Caregiver writes date and time pills were set out.
Parent takes pills, writes time taken and her initials.
I now physically stand by her & hand her each pill … then do a quick look in her mouth with a flash light. It’s crazy, how she learned tricks on how to hide them within her mouth.
She moved into my home over 5 years ago & the first 10 months-hubby & I were not aware of her tricks & not taking her medication.
We started finding pills 💊 underneath items within her bedroom. Even at the kitchen table -underneath the placemats, on the floor, stuck underneath her plate & in her napkin.
As I mentioned, if I give her the medication, I stand in front of & watch her -then check her hands & quick look inside her mouth. When hubby gives her the medication, he also stands in front of her & watches. Her social worker told us to start putting her meds in her yogurt, applesauce & eggs. The ones that are in capsules, we can twist open or cut the top off and pour into her food. The ones that are tablets, we can smash them with a spoon & also put in her food.
Good luck 🍀 to all of us caregivers dealing with caring for our loved ones.
Please think carefully about your Mothers symptoms Before she began medication. And now that she's on the medication
Has their been a great improvement in her health? Are her symptoms less?
Also put together a list of other health problems your Mother has developed since she's been on the medications.
Then review the side effects (both most common & rare) and consider the probability that the meds are causing problems
Also review the dosages...all med dosages are given related to the frequency/severity of symptoms. I have often found the elderly on doses far higher than medically indicated for the problems they are having
Finally, check that all the meds together is medically prudent. Ie...when one is taking a medication, there are a list of others medication that are contraindicated. A pharmacist could easily check the list for compatibility. However is not legally able to advise on doseage. You can review easily online
One would assume the physician knows & considers this when prescribing
However many dr's are very familiar with meds used in their speciality, and not used by dr's in other specializations of medicine that your Mother may be visiting...eg..gastroenterologist , optholologist
Lastly, in the elderly toxicity due to many meds is common due to the lack of exercise & generally slowed metabolism in the elderly.
So maybe to help your mom be involved in the solution, see if the mom will agree to sign/initial the note and write time she took the pills.
Caregiver writes date and time pills were set out.
Parent takes pills, writes time taken and her initials.
Mom can't remember. Don't give her responsibility of taking them. You and she are both beyond that.
Particularly when you have given so much in caring for others
Others may not know, but the Angels know. And I sense it also
You are a very strong spirit and should be proud of what you have achieved.
If ever you would like to chat to someone I would be happy to hear from you
I have been taking care of my 85 (turns 86 tomorrow) year old Grandfather for some time now. I have learned patience and acceptance, and appreciate each passing day.
We are all capable of much more than we realize until life tests us
bless you for all that you do for her!
I found many little bags of pills in her room hidden at the bottom of stuff, probably weeks and weeks worth of pills. Apparently, she didn't die from not having those pills. So, finally I stopped caring whether she took them or not. I asked her doctor to review her med list and eliminate all except the 'must take' meds. Before she was taking 8 to 10 different meds, not counting vitamins, and eye drops; now, she's down to 2 meds which I crush and put them in her drinks.
No more arguments.