I am in poor health and am unable to provide level of care my dad needs. My sister insists we have to split the job (although she isn’t around much.) She has scared my dad my telling him I want to put him in an awful and nasty nursing home! (Not true!) But I’m stuck with hospital visits, trips to store and doctor, handling meds and appointments. She has a job, runs a business and also is promoting a book she wrote. Dad has plenty of money so he can afford nice care. She insists we must do the care “out of love”, but knows NOTHING about caregiving and won’t learn. (I cared for our mother for like 17 years while also raising a child). My sister is their favorite and I’m the bad one — although I’m the one who does all the important care. I’m deteriorating health wise and need advice. Thank you for lustening!
Going to be a tough moment but worth it when she has to see how much effort one person has to do.
Hugs and prayers
I'm assuming that your Dad is still mentally healthy. Let him visit it. Let your sister visit it with or without Dad. Then talk to him about what he likes and doesn't like about what he saw. Tell them that you are doing your research now so that everyone won't have to do as much research later as your health is getting worse. Worse, if an emergency came up, at least you would be further along in finding a suitable place, rather than picking the first and only one available.
The Assisted Living Centers and homes of today are so significantly different than places 30 years ago. What I saw when I first started my research was far beyond my imagination and nowhere near what my Mom saw when she used to inspect them 50 years ago. There are so many options. It took me months to set up appointments and visit the ones that made the possible list. Some even have a choice of 5 entrees that you can get for breakfast, lunch, and dinner, complete with white cloths, china and polished silverware.
We tried one out when I did respite. I learned so much from that experience that another place that had been removed from the candidate list, was reevaluated because we had new criteria.
If your Dad doesn't like any of them, don't be sad, just keep looking for potential places and analyze his comments. As you and he talk about it, he will realize that you are just trying to find alternatives for the future....and then the future will not be as scary.
Don't try and pressure him or anyone in setting a timeframe of when he will be there. Although that is helpful to the administrators, that is NOT what you will be doing. You are only gathering information and doing research.
It is possible that the one that he likes the best will have a waiting list. Its okay because at least you are much more aware of what he is looking for and what is available in your area. And before you make your final decision, whatever the timeframe is, make sure that you visit again. A lot can change with a facility in a few months like new licensing, new price list, new administrator, new nursing and care giving staff, etc.
P.S. Be thankful you are the bad one. That means if you walk away from the situation, there will be no guilt on your part as you are already the one that they couldn't depend on....in their eyes.
What is important in this. Your mother may have POA that becomes effective once she is declared unable to make her own decisions or safe care for herself. Then you start getting paid for taking care of her. Your sister needed to pay or it’s paid from estate if you submit bills with details including your work hours to the Court and ask for payment or get payment approved. This is the law.
And just because sister wants something doesn’t mean it goes if it is physically and mentally harming you. Your sister has lesser rights per Courts if she is not doing 1/2 and hence cannot know first hand anything about your mother’s needs.
If sister not around nor helping, nor paying you so do her 1/2, stop telling her about your mother. Those not around do not have much first hand knowledge to make their decisions upon. There is NO law requiring you tell her about your mother’s condition or situation unless mother wrote that in her living will. sister is in a peanut gallery not in real life.
And sister doesn’t make the rules. And the rules change. Your sister is being greedy and abusive of you also. She is wanting you to provide hundreds of thousands of dollars in home health care and support to your mutual mother yet she does not so the same. She wants you to do this ao you save her hundreds of thousands of dollars in future assisted living facility costs.
You sister is trying to save her own money at expense of you physically and psychologically.
Sounds like if you place her on assisted living on your own, your sister will make you pay 1/2. Is that okay with you? And some States require the children’s inheritance who failed to help, be taken by the govt for the same amount the govt had to pay to house and care for their mother.
At this point, you can also file for temporary conservatorship, since you are primary contact for your mother. This will give you right to place her in assisted living wo sister’s consent needed.
Then a Court Investigator will contact family members and decide who best can care for parent and make this decision. You can ask in those proceedings that your sister be required to pay in full or part for your mother’s upset in assisted living if she makes more.
Conservatorships can be expense to get final one, because of interviewing then family and doing medical tests. Do NOT weaponaize conservatorship by threatening your sister with one. She will eventually find out as you must be contacted and interviewed by Court Investigator. Just do it if that’s avenues you want. Legally, you have no right to tell her anything unless she asks or it’s in living will to give her updates.
Also. local county can give you a break. Call local Aging or Elder assistance agency. In San Diego for example it is called Aging and Independent Services. In another place, it may be called Senior help. These are 100% FREE.
Your sister is selfish and arrogant and not thinking what is best for your mother for not being involved enough and for wanting you to save her money by denying you right to place mother in a safe, social assisted living that Medicare might pay assistance portion if mother has a disability.
You can report sister to county Adult Protective Services for her NEGLECT of mother and enslaving you.
hire an estate elder abuse attorney for an hour to guide you. Some states have a free attorney at Senior Centers for these matters.
Daphne, you are very new on the site, and you are making very strong (and long) judgements about OP and all the other responders. Let’s hope that you think better of it for a while at least.
S T O P doing all you are doing.
If it is his money, who manages it? Who is the POA?
Perhaps get marketing materials from the 'very nice' assisted living facilities and show him the photos. Take him to visit several or at least 1-2 so he can see for himself. Get a list of the services offered in Assisted Living and present to your dad and your sister. Sometimes seeing things in 'black and white' (or on paper, including photos) makes an impact that nothing else can.
If your sister is the POA, the only changes (it appears) that you can make is to change your own behavior.
Loving a parent is providing the best care possible. And, that includes loving our self and our siblings. It sounds like your sister doesn't apply this 'out of love,' to you, her sister.
Stand up for yourself. You need to - for you and your dad.
Gena / Touch Matters
As I read it, the OP has found a very nice assisted living facility which he refuses to consider because (he says, she says) sister has told him it's a hole where the nurses will give him cold sponge baths and force him to wear diapers. Mm. I should think liking his house and his privacy, liking his daughter's help, and liking his money all carry a lot more weight with him.
If the OP isn't happy with the role she's been handed it's time to stop volunteering. There are more than two options here, and it's Dad who needs to figure out what he wants from the choices that are made available to him.
Next help Dad make a list of the things he needs help with. Figure out how many hours/week (or day) this is. Help him interview and hire home health aides. If Sister doesn't like him spending his money on his own care, she can step in and take up the slack, but don't involve her in the planning.
If you get more pushback than you can handle, try plan B: Dad, why don't you move in with my adorable sister? That will save you money AND make it easier for her to take care of you!
The OP should stop helping dad. She deserves her own life now. She spent 17 years caring for her mother.
The sister didn’t help in the past with the care of her mom. This may or may not be because of being too busy.
There are various reasons why people don’t help.
All of us are busy in our lives. Caregivers provide nonstop care and they are often overwhelmed and exhausted.
If places are switched, the non caregivers suddenly discover how hard caregiving is. Yes, let sister take over the reins.
At home care is the best.
Since your father has plenty of money and you no longer feel you can provide much care. Please look into home care in your area. If he just needs help with home chores, he could have a cleaning lady come in once a week. If he needs help with picking up groceries or cooking, he could also hire someone for those things. I do not know the level of personal care he needs, but he can also hire someone for those things. It doesn't need to be one person for all things.
I do recommend that even if you don't want to provide care anymore, that you do still visit him often. He NEEDS his family there with him too.!
It is time to use dad's money for HIS medical care. Hire some folks to handle his needs with you and sis using a calendar method to be there as well.
It's important for her to know that 'out of love' she has to consider more help for your dad than you can do on your own. And 'out of love' she will have to consider the options: moving forward with hiring people to keep him at home or placement at a facility where he can get 24 hour care AND both of you can visit without having to manage the heavy work of caring for him.
Give her a deadline and then make a decision (assuming dad can still make his own financial decisions). Get dad involved - tell him YOU need help to help him. Ask if he'd rather have care at home or go visit the AL places in your area. If he chooses in home help, start the hiring process. Leave sis out of the conversation.
Time to plan your release from servitude and find the best place for your Dad.
While you're scheduling a full exam, please plan a luxury vacation at a spa resort and let Dad treat you!!!!!!!!!!!!
Make an appointment with an Elder Law Attorney to strategize the best way to place Dad. Make sure the best choice includes his proximity to where you live so that you can eye watch over him. Be sure you get all the legal issues set up like Power of Attorney, etc.
Take a look at this wellness spa: https://www.miravalresorts.com/
I live in Oregon, my parents in Arizona. Their choice is to stay at home for their duration. I have a sister in CA that thinks we could do things more cheaply, but we all agreed a nursing facility was not the option when my parents want to be together. My parents together get 14 hours of home care a day. My mom's memory is going, though she still drives and it is limited. Caregivers focus on my dad (stroke - has PT 5 days per week and has gained back some control of left side, but cannot reliably do transfers safely), do most shopping, meals and cleaning. I visit for 1-2 weeks a month to take care of financials, check the care, restock cleaning and non-perishable food supplies, handle the details that are bothering the care givers, repair stuff, and... (my parents pay for the airfare and all items while I am there.)
I have been slowly building a case for the "remaining" parent to move to Oregon and go into one of five facilities that are within 10 minutes of my house rather than me live in AZ away from my family. Neither can live alone today and I have a two story house, so I'm being realistic for the future.
There are no perfect solutions. Home care with me visiting 1-2 weeks a month works for my family and is still work on my part.
even if he goes to a facility, you will still have to take him to appointments. and they NEVER care for their residents they way they say they will.
I suggest making a list of all the things you do for him, and how much time each takes, present it to your sister and ask her what she is willing to sign up for.
Stand your ground tell her what you’re willing to do and what you’re not and mean it! And of course any boundary is subject to change( but when you choose) because life is always changing. Try to find a support team to help her see it’s better for him to be in a facility.
Be firm, be strong and stay grounded!
Wishing you the best outcome 💕
My answer that I posted earlier is very similar to yours 😊.
Explain that the level of care needed is more than two untrained people can handle. Explain to her placement in a facility has nothing to do with not loving someone. Have your fathers Dr explain to her what’s best for your Dad. If she insists, then tell her to hire someone to help her, because you are unable. End of story. Don’t cave. It won’t be easy, but stick to what you KNOW is right.
If you need to convene his doctor, a mediator, a social worker, and whoever else can come (neighbor?), then do it. The time has arrived for your father to have the help he needs in a professional setting.
This is about all of you being able to live the rest of your lives to the best. You have already determined, correctly, that you are unable to provide the daily help he needs.
It's not 'out of love'. That's just ridiculous. Love means everyone being as safe and as healthy as possible.
Once your father has moved, you can both visit your father on a regular basis, and come up with a plan.
Find out what programs the AL offers to families. Can you join him for meals? Can you take him out for the day? Do they take the residents on field trips? Many of the ALs have music and art programs which you can take advantage of.
Life is about to change for all of you and you need to take charge of the situation so that your father lives his best life in this last stage of his life.
There is nothing wrong with Assisted LIving. It is necessary and helpful. I believe that once you get him settled in you will all feel a huge sense of relief.
The thing I have noticed from my own situation is that the one not doing the work is the one that downplays what is needed and downplays how hard it is.....