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I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
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VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
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He has moderate dementia but he knows how important it is to take the pills exactly on time. Sometimes the staff can get him to take the pills mixed with a bit of pudding. Other times he balks. Today he missed two doses over the course of the day.
Do you know why he is refusing? Perhaps he doesn’t want to prolong his life with Parkinsons. If this is what is happening, it isn’t necessarily unreasonable for him to refuse. If the meds have an unpleasant effect on him, that’s a different matter, and perhaps is worth getting back to the doctor about. Best wishes to you both, Margaret
Yes, there is enough "himself" there to wish it were all over. He has stated that his family is "torturing him" by leaving him in long term care. At this point I don't know if fussing about pills is a service or a disservice.
Nobody can force an elder to take medication against his will. Your loved one does not 'know how important it is to take the pills exactly on time' because he has moderate dementia now, and therefore, no short term memory left. He may have known at one time how important it was, but he no longer has the capacity to remember such a thing; that part of his brain is now damaged. He may remember that information for a moment or two, but then it flies right out of his head. Or he won't care that he needs medication; it won't matter to him anymore.
Please understand what dementia means and how it affects your loved one, and how it will continue to affect him as time goes on. Hopefully you are learning all you can about dementia so you'll understand what's happening to this person and that nobody can fix the situation; not doctors, not the staff in his long term care facility, nobody. When his situation deteriorates enough, get a hospice evaluation for him ordered by his primary care doctor. At that point, all medications will be discontinued and nature will be allowed to take its course. He'll be kept comfortable with pain and anxiety medications as needed. He will not need to swallow anything at that point; those meds are dispensed differently when hospice is involved.
Leave him alone. The staff will try to offer the medication a few times, then they'll leave him alone. It is what it is, and he's trying to maintain what little autonomy he still has.
Imagine being forced to do something to your own body against your will. (Oh, wait...)
Has there been any consideration given to administering his carbadopa/Levadopa by abdominal injection with the Duopa system? Is he just tired of all the pills? Frankly he would likely feel much better and functional with his Parkinson's meds so it's a shame he's often refusing. Does he have noticeable "off" times where the Parkinson's symptoms not controlled because he's missed a dose? If yes, maybe he gets one of the "rescue" meds administered, hopefully followed by a regular dose. If he's not experiencing any increase in symptoms of an "off" period then maybe it's just going to be okay to have him resist when he does. If there's no difference in his symptoms if he takes or misses a dose maybe the doses that he does take are not being absorbed properly due being taken too close to eating protein or because the pills are not moving quickly enough into the small Intestine where they can be absorbed.
Not much you or the Nursing staff can do. If these are pills to help him with cognitivity be aware as Dementia progresses this pills will no longer help.
It is important for PD, meds always on time. Giving them with pudding is not such a great idea, at least if it is levodopa, it works best without food. Maybe they produce nausea, or other symptoms, best to get neurologist‘s opinion.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Please understand what dementia means and how it affects your loved one, and how it will continue to affect him as time goes on. Hopefully you are learning all you can about dementia so you'll understand what's happening to this person and that nobody can fix the situation; not doctors, not the staff in his long term care facility, nobody. When his situation deteriorates enough, get a hospice evaluation for him ordered by his primary care doctor. At that point, all medications will be discontinued and nature will be allowed to take its course. He'll be kept comfortable with pain and anxiety medications as needed. He will not need to swallow anything at that point; those meds are dispensed differently when hospice is involved.
Best of luck.
Imagine being forced to do something to your own body against your will. (Oh, wait...)
If he's not experiencing any increase in symptoms of an "off" period then maybe it's just going to be okay to have him resist when he does.
If there's no difference in his symptoms if he takes or misses a dose maybe the doses that he does take are not being absorbed properly due being taken too close to eating protein or because the pills are not moving quickly enough into the small Intestine where they can be absorbed.
Giving them with pudding is not such a great idea, at least if it is levodopa, it works best without food.
Maybe they produce nausea, or other symptoms, best to get neurologist‘s opinion.