My father had surgery two months ago. I told him after the surgery he would not be able to care for himself. My stepmother has been in a nursing home for 15 months and my dads health is declining. He fought me tooth and nail to not come to my home so I could care for him. He finally relented and said it would only be two weeks, and now it’s been two months. It is very difficult caring for him because he did not raise me and my brother when we were 7 & 9 years old. After my mother died, he remarried and his wife did not want us. He sent us to live with our maternal grandmother. Now he needs me and my heart is not in it even though I am caring for him. I won’t abandon him in his time of need but I’m going crazy and am burnt out. How do you work through those types of feelings?
Your job is to find a place for him. A Social Worker must help you. Reach out, as soon as possible. Do not take no, for an answer. These people are paid for what they do.
After that, your job is to visit him once a month, at most.
He did what he was able to do, to help you out, growing up.
You owe him nothing. Do the above only is it will help you find peace for yourself.
D
I decide? Now he wants to live with me full time.
I don't think you should send your father 'back to his home to rot.'
I don't think you're a 'fool' for 'doing something you shouldn't be doing.'
I don't think you're a saint or trying to be a martyr, either.
I don't think you need the advice of a priest or a man of the cloth, nor do I think you should try to figure out which Medicare services he qualifies for, because that would be under the assumption he's staying with YOU, which I think is a mistake.
I do think you're overwhelmed with the prospect that lies before you, however. Even if your dad was the best father in the world for your entire life, it's STILL too much of a burden to take on the responsibility of in-home care for an elder (for the vast majority of us). And it's okay to feel that way; and to say it out loud; and to find alternative living arrangements for the man.
Why not place him with his wife in the same SNF she's at? I don't see what's to 'LOL' about that idea, either, frankly. By doing this, you are not abandoning him but placing him in a care environment where a whole team of people will be there 24/7 to see to his needs. That hardly constitutes abandonment, negligence or not caring.
Wanting to have YOUR life is not a sin or a crime or something to feel horrible about. Now, make it HAPPEN.
Wishing you the best of luck!
Clearly you are a caring person. Despite what happened in the past, you have been willing to help him out.
So, what is the reason he is still there? He fought with you because he didn't want to move in, so what is the issue? Why is he still there after 2 months instead of 2 weeks? Failure to improve following surgery? Additional medical issues? Or has he just gotten used to being waited on and lets you do all the work?
If he has "recovered" from the surgery, you need to discuss his plans going forward. He would need to take on his own self-care, even if it is in stages, to become more self-reliant, and then move back to his own place.
If he hasn't "recovered", what is the issue? Has he failed to try to improve? Is he just being lazy and letting you do everything?
You shouldn't have to "work through" any feelings. Either he is capable to care for himself or he isn't. If he isn't, then he needs to seek LTC placement. Where was he living before? House or apartment? Is that still open for him to return to? If he has a house, but can't care for himself, he needs to sell it to pay for the LTC. If there are no assets, Medicaid.
Again - you are a very kind-hearted person to insist on taking him in, despite the past, but it IS time to move on. You can see to it that he either gets help in his own place or moves to LTC, and then you can choose what interaction you wish to have going forward. Rather than wallow in these feelings, use that energy, be proactive, and formulate a plan!
You might want to look at practioners that deal with the mind-body connection like Dr. Bruce Lipton. Perhaps it could help yo deal with your emotions.
I am having a tough time understanding why it is that you insisted he come to your home? Why didn't he go to rehab?
Your empathy and willingness to step up to the plate speaks volumes for your character, but it is important to apply that to yourself as well.
The best possible outcome for this that I can envision is that you are able to spend time with your father now and try to resolve some of those lingering and probably painful issues before he passes. I've seen it happen, and it may be possible. For that to occur, I would recommend that you see a counselor; many are offering appointments online these days.
Second, growing old alone is no picnic. If you can help your father work through his planning, update his documents such as his will, trust, power of attorney, medical power of attorney, living will to get them up to date and get his finances organized, you will be setting the stage to help him make good decisions for himself moving forward. He might even appreciate it knowing that his wishes are on paper, legal, and must be followed as he grows older and needs more care.
At that point, you will be able to move forward to find out what services he qualifies for, either in-home or in assisted living. It sounds as if a skilled living placement might be premature. Many organizations offer levels of care and as additional services are needed, the individual moves to a different level of care.
The best help as you might imagine is for the very poor or the well to do. Those of us in the middle sadly are at a true disadvantage.
There are some insurance companies out there who are offering plans which pay for services to keep seniors in their homes as long as possible. Reverse mortgages as well as equity loans may be used to pay for in-home care services. Medicaid is another option, but rules are state by state. He may qualify for Medicaid if his income is below a certain level. If so, he will be able to receive a multitude of other services as well, such as housekeeping, meals, transportation and others.
As you may already know, placement in assisted living is at a minimum of $4,000/ mo. and up. Skilled nursing costs around $6,000/ mo. and up. In-home care is around $20/ hr. and up; discounts are offered for guaranteed and/or longer hours. Most people have to sell their homes to pay for this, and then when the money runs out, to transfer to Medicaid. Sometimes the facility won't keep them when that happens, or owners or contracts change, and that can be a nightmare to oversee.
I admire you for caring about a fellow human being in need, despite your past. It's difficult to understand choosing a mate over my children, but I don't know your father's circumstances. Perhaps you don't either.
Offer your intelligence, your good judgement, your time, your counsel and your assistance to your father in making these decisions. But please keep in mind that your father is going to need much more assistance in the future that one person can provide, no matter how willing or available. You can see that now even after a relatively short period of time.
If he won't work with you, then it's a different flowchart altogether. Let us know.
Regardless of what this man did or did not do, try to have an ounce of sympathy Riley2166. Is this how you treat everyone in your miserly existence? Have you any friends left, or have you driven them all away with your heartlessness?
If his doctor says he needs 24/7 care, then I would place him in the same place as his wife.
The State doesn't step in unless a family member, or anyone for that fact, won't take care of a person. A SW will do their best to get someone to do the caring. Even to the point of guilting them. But there is no law that says you have to give up ur life to physically care for a parent. So, when there is no one willing to take a person in or not willing to do what is neccessary to get Medicaid help for that person to place them in a NH, the State steps in and the court assigns a guardian. By doing this, you now have no say where he is placed or his care.
If you don't have POA its going to make it hard to place Dad. And also if he still has his cognitive ability. If Dad refuses to assign u POA, then the best scenario is the next time he is in the hospital make sure he goes to rehab. While in rehab, ask that he be evaluated for LTC. If its found he needs 24/7 care ask that he be transferred there after rehab. If he has no money, apply for Medicaid.
I just had this happen with a friend. If she had her way, she would not be in LTC. I asked my daughter (worked rehab/NHs 20 yrs) if my friend could be kept against her will and the answer was yes. If it was determined while in rehab that she needed 24/7 care and there was no one willing to give that care or she can't hire that care, then its considered unsafe to discharge her and they have to keep her. She had POAs in place but I guess he was not willing to care for her. (Friend is not an easy person to live with) So now she is on Medicaid.
Good luck.
POAs give an appointed person the legal ability to make certain decisions and sign documents, manage finances, direct medical care, etc. It does NOT mean you must care for the person (not in the care-giving sense.) At most the POA can seek help, find place(s) to move the person to, try to facilitate said move, etc, but there is nothing about POAs that require us to provide the actual care. FYI - it isn't stated here, but some people will say GET POA and MOVE said person to LTC!!! POA doesn't allow for that either. It can facilitate signing the admitting paperwork, but it does not give anyone power to move the person, esp if the person refuses (been there, done that, EC atty advised we can't force mom to move.)
Consider that some people assign POAs to someone who is NOT friend or family, such as an attorney. They may have no family left or any who wish to provide care, even management of affairs (POA) or are not trusted. Friends may have passed away or are too old to help. Do you think any attorney is going to want to play nanny for someone who needs 24/7 care? Nope.
I wish you good luck, but you may be in for a decade or more of this, getting worse and worse, and it just may ruin your life. That's the reality. It isn't a choice I would make.
I am glad there are Saints in the world as well as Sinners like me. However, I find that their job description sees them shot full of arrows, tortured to death, then prayed to by the rest of us for eternity to fix everything for us. It just isn't a job I can apply for; I am sorry, but I am not up to the job.
Cetude said it straight. If you CHOOSE to do this, then be clear that you are doing this of your own CHOICE. You may hear a few platitudes of "Awwwww, aren't you a wonderful person?" but they will provide little to comfort you, and there will be even less help for you.
My heart so goes out to people on the forum, who, like me, know they are just quite simply not up to doing caregiving in the home despite having on their hands the kindest, gentlest, most wonderful and devoted parent in the world. My heart doesn't go out to those who choose to ruin their own lives and often the lives of their own family, using as an excuse for martyrdom words like "guilt" and "obligation", and doing all this for someone who (sadly) doesn't deserve it.
Place your father. Visit him when you are able. And get on with a life would be my advice. The fact you have taken him into your home already will make that difficult. I am sorry.
What surgery did he have that he can't care for himself?
MEANWHILE you lose your job because caregiving is a FULL TIME JOB. And your life savings dwindles down to zero. Oh...your own siblings may fight over the estate after your parent dies.
Go ahead..be a caregiver. And LOSE YOUR OWN LIFE.
Been there..done that..now I"m 60 and having to start over again. On top of this CoVID-19 mess.
Im hoping you find peace and joy again as you start over. You still have many good years left. Today is a new day and another chance. Best wishes
One of the most common trends I've seen on these forums and elsewhere is people that have bad relationships with their parents getting roped into caregiving and destroying their lives from it. Don't let that happen to you.
It does not change if he was a wonderful father or a crappy one, no child is responsible for providing care to their parent.
Next providing care, if you choose to do it, does not mean you have to do hands on caregiving in your home nor theirs.
He can go live in a care facility.
After you come to peace about "rehoming" him, you need to know what you actually can do about the situation.
- do you have durable PoA for him? Does anyone?
- has he ever been medically diagnosed (like it is in his records) with dementia, ALZ, Lewy-Body or any cognitive issues that affect his capacity to make rational decisions for himself?
- your profile says he can't afford in-home care, but do you know enough about his finances to know if he can private pay a facility, even for a short while?
Perhaps your father needs to know that if he doesn't cooperate APS will be called in and the county will pursue guardianship of him. They you are fully released of all of his care: medical, financial and anything else. Maybe this is the path you should take anyway. This is the "retirement" he planned for.
Answering these questions will enable the forum to give you practical suggestions. I know you will get all the moral support necessary to move forward in getting your father the appropriate care he requires. I wish you all the best and peace in your heart during the process. May it go quickly and smoothly!